By ukparachuting - UK Parachuting
Come and join the team from Action Duchenne on the 7th July @ UK Parachuting (Sibson Airfield). Have an experience of a lifetime whilst raising funds for a great cause.
Action-Duchenne funds cutting edge research into Duchenne – over £5 million since 2003. We are committed to finding treatments, and eventually a cure for everyone living with Duchenne.
We campaign to ensure everyone living with Duchenne has access to specialised care.
We provide important information for the Duchenne community and the opportunity to access clinical trials through our DMD registry. Please get in contact for more information.
We run projects for people living with Duchenne to help with education and prepare them for adult life. We want to improve the lives of everyone affected by Duchenne and empower people with the condition to lead long and fulfilling lives.
What is Duchenne muscular dystrophy?
Duchenne Muscular Dystrophy is a degenerative muscle wasting condition affecting around 2500 children and adults in the UK
Duchenne is the most common and severe form of muscular dystrophy. Over 99% of people affected are male.
Children born with Duchenne are likely to need a wheelchair by the age of 12 and have significantly reduced life expectancy
There is currently no cure for Duchenne